Sharon Isabella

Saturday, February 14, 2009

One more challenge handled with dignity






So, our girl continues to rise above hurdles. She was admitted to the EMU (Epilepsy Monitoring Unit) this week to see if we could get a handle on her seizures and see if the meds are working or not. She had 25 wire leads attached to her head, which were attached to a chord which plugged into the wall....for three days. Imagine being a toddler and being so confined. She was amazing of course. Every doctor and nurse who came into the room was greeted with a "hi!", high five, and a "Bye!" as they left the room. It was very hard for her to be so restrained, but she really managed it well. it was also very difficult (for both of us!) to sleep in bright lights (so that she could be seen throughout the night). We were videotaped the entire time. Luckily we had some great visitors!!!! Uncle Jason and Namon get kudos for coming multiple times to visit, and friends Jack, and Daniel and Kayla were wonderful surprises for Sharon to brighten up her time there!!
The EEGS will be reviewed and we won't get a final report for many weeks, but overall things are looking good. She seems to be doing well under the medication she is on now so that is a relief! This will be an ongoing journey throughout her life and we'll just do our part to try to stay on top of what she needs.
Yesterday when they "let her go" from all the wires she was just beaming and so happy! She walked around and was just so happy. And she and I slept like ROCKS in our home last night :)