Hello! I can't believe i'm not posting a picture, but i don't have any and am pretty short on time these days...
Just wanted to give some updates:
a few days ago Sharon started taking independent steps!! (her very first ones were while out with cousin Anna..Anna walked away to do something and Sharon took off after her! i just about passed out because i wasn't expecting it at all!!)
She is now walking just about all over our house. She still prefers to hold someone's hand, but is getting stronger every day. RJ and I had held out hope that she'd take steps by her birthday (3 weeks from now), so we are so excited! She is still very weak and it will be quite a while before she is independent as a walker, but it's still amazing! To think of the pain she's been in (and is still in some) and what her bones and muscles went through being cut and moved, etc...
And, (this is actually even more amazing!), she is actually doing a little assisted crawling. Crawling was a goal on her treatment plan since she was 9 months old. I finally had them delete it last summer because she was just totally opposed to it and it became a waste of therapy time. This past weekend she indicated that she wanted to move on her belly so i helped her to get into position and she did it happily. I don't want to push it because it's HUGE and would be SO SO good for her if she'll stick with hit (and she's stubborn enough that if she decides we're making too much of a big deal about it then she'll never do it again). But i'm able to get her to crawl a couple of feet a few times a day (with me holding her up and helping...it's a very hard task that she is undertaking...if you want to see just how hard, get down on all fours and try to crawl with only one arm, and with one leg dragging behind). If we can get her crwaling stronger, this is going to be the KEY to her learning how to get off the floor into standing position (she never learned how to do that before the surgery, so it's a huge goal now...what good is being able to walk if you can't get up and down off the floor??)
So, there's been a lot going on with our girl! and she is just BEAMING all over, so happy to be moving again and taking steps.
We're so proud of her!!!
Just wanted to give some updates:
a few days ago Sharon started taking independent steps!! (her very first ones were while out with cousin Anna..Anna walked away to do something and Sharon took off after her! i just about passed out because i wasn't expecting it at all!!)
She is now walking just about all over our house. She still prefers to hold someone's hand, but is getting stronger every day. RJ and I had held out hope that she'd take steps by her birthday (3 weeks from now), so we are so excited! She is still very weak and it will be quite a while before she is independent as a walker, but it's still amazing! To think of the pain she's been in (and is still in some) and what her bones and muscles went through being cut and moved, etc...
And, (this is actually even more amazing!), she is actually doing a little assisted crawling. Crawling was a goal on her treatment plan since she was 9 months old. I finally had them delete it last summer because she was just totally opposed to it and it became a waste of therapy time. This past weekend she indicated that she wanted to move on her belly so i helped her to get into position and she did it happily. I don't want to push it because it's HUGE and would be SO SO good for her if she'll stick with hit (and she's stubborn enough that if she decides we're making too much of a big deal about it then she'll never do it again). But i'm able to get her to crawl a couple of feet a few times a day (with me holding her up and helping...it's a very hard task that she is undertaking...if you want to see just how hard, get down on all fours and try to crawl with only one arm, and with one leg dragging behind). If we can get her crwaling stronger, this is going to be the KEY to her learning how to get off the floor into standing position (she never learned how to do that before the surgery, so it's a huge goal now...what good is being able to walk if you can't get up and down off the floor??)
So, there's been a lot going on with our girl! and she is just BEAMING all over, so happy to be moving again and taking steps.
We're so proud of her!!!






