Sharon Isabella

Wednesday, June 22, 2005

Hello!

Hello once more! Sharon had her first trip to the beach last week and enjoyed herself immensely. It was too windy and sunny for her to be out, but the couple of times she did get to the beach in the evenings she just loved being with her big cousins. She had so much fun with all the people all week...i dare say that she is a little bored with just me again!
Today was our first physical therapy appointment. I really like the therapist (who turned out to be a neighbor out here in the sticks!). We have some good things to work on with Sharon to get her muscles stretched (she is "low tone" so we will work to make sure that her muscles don't shorten from not being used as much as they should be). Overall though, the therapist told me a few times during the session, "you should be very happy. She looks so good compared to what i was expecting from reading her reports." Yay! one more comfirmation that this baby isn't going to let herself be labelled...
So, we'll meet with the PT once a week. At this point she'll be working more to give RJ and I things to do with Sharon, but as she gets older she will be able to do more direct work with her. The therapist did say that she feels that Sharon will require PT for quite a while (years), which we expected. She also recommended that we get started with OT as well since she thinks that some of Sharon's twitches,etc. could be sensory related and could be helped by OT, so i'm looking into getting that started sooner rather than later.
I'm relieved to have this all started. I feel like we are in such a waiting game to see the extent of damage, so it's nice to actually have something happening and someone to watch her progress and help us along on a regular basis...
other than that, she is still doing well. Starting to teeth, but still pleasant. She went to her first movie last night (Batman Begins....GREAT movie!) but it was too loud for her so she missed most of it and played with her daddy instead. She loves to talk to her stuffed toys and is just a joy to be around!!
God Bless all of you and thank you for continued prayers for healing of her brain...
Jaye, RJ, and Sharon Isabella

Saturday, June 18, 2005


reflective Sharon Posted by Hello

Cutie pie Posted by Hello

Sharon and her cousin Anna Posted by Hello

Friday, June 03, 2005

Proud Mama

So today, this little angel went visiting great-Gram at the assisted living home. Great Gram took us to show her off to everyone (and i mean everyone!) there and Sharon made me so proud by giving a huge smile to every single person who wanted to talk with her (and even those who couldn't talk). She seemed to be in her element and i know she made all those folks' days...i guess those Works of Mercy can't start too soon!!!
She seems to get getting stronger these days, much to our relief. And, the trembling that we have been watching so closely seems to be settling down a little...keep up those prayers! Her little miracle brain just keeps on amazing us! We still haven't had PT start yet, so RJ and I are creating our own "regime" for her. RJ is so creative and fun with his exercises with her!! He's such a great dad! She's starting to tolerate tummy time much better and is much more interested in her toys as well. I have some more cute pictures but don't know how to post them...i guess i'll wait until Jax or Pop Pop takes some more with the digital camera.
God Bless!!
Jaye, RJ, and Sharon Isabella